Roo's A1C skyrocketed. Both Roo and I knew we had lost all sense of diabetes order the last couple months and it freakin' showed. This was really the first time we kinda blew it. It sucked. And worse, the CDE uncovered many missed breakfast boluses! I'm a loser. Roo leaves before I'm up. Her dad tells me she is always running late and in a rush. I should have been checking the pump history for breakfast boluses.
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So in the middle of all this diabetes management chaos Roo wants a pump break. God - it's like starting over again. Help me. But she was so happy today when she disconnected! No pump and no infusion set anywhere. I keep telling myself that this is what we both need to get back on track. But....eeewww. The pump did everything for me (except remind my daughter to bolus for breakfast). IOB, I:C, all the math, ISF, record keeping. I told her she needs to write down everything but she doesn't think she needs a little notebook. Uh...yeah..oh Lordy, makes my gut churn. It seems so different than two years ago when she was mostly near me to now when she is mostly away from me.
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We decided to start with the pump settings exactly. Her total basal on the pump was 9.75ish so 10 units of Lantus was injected at noon today and she ripped that set out 5 seconds later. I've liked the thought of having some Lantus going on in there to protect against DKA. We talked about going untethered and even doing shared long acting/pump basals. But she wanted to be free of everything.
Right now my mind is fixated on if she has enough snacks with her, math errors and how her night time basals on the pump are half of what her daytime basals are. No custom hourly basal rates now.
I'm not ready for my patient to not do what I say. This is hard. You are so good at this.
ReplyDeleteI'm not ready either!!! I don't wanna. It's so freakin' hard.
DeleteDon't beat yourself up for missed breakfast boluses. I swear, with all of the things we have to remember, it's a miracle we don't forget more things. Hang in there!
ReplyDeleteI was just diagnosed last year (I was 25) and I don't have insurance, so no pump. The longer I go without it the more I think I won't want one... I mean what happens if it isn't working right? (It's not like the pump says, "Hey lady, you aren't getting the insulin you're supposed to!" I don't know, maybe I'm just thinking about it too much, it's not like it's even on the table right now... I see that you are VERY comfortable with the pump (granted it must make managing kids A LOT easier) I hope maybe I'll come around by the time I can actually afford one...
ReplyDeleteSo sorry to hear about your diagnosis (and no insurance)! I am a HUGE believer that there is not a single best way to treat diabetes. Everyone has to find their own best way. As is playing out in my house currently. Roo is still loving the injections so I think we will end up being a house divided - pump AND MDI. Oh - and I was only comfortable with the pumps because I used them. Certainly was not that way in the beginning! I was REALLY nervous when the girls switched.
DeleteWell that makes me feel a little better! I think for now we will stick to the injections, I don't want to add more stress to my boyfriend's life either. He is so good at keeping an eye on me, he knows all my ratios and equations- he will help me deal with confusing numbers or new meals (like Thanksgiving... kind of a crap shoot) so perhaps until life settles back down for us a bit we will stick to what we know! :)
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